Tips for Managing & Living with Cystic Fibrosis

Not only will proper medication and treatment help individuals with Cystic Fibrosis live longer, healthier lives, but so will making small lifestyle changes. These changes can be as simple as slightly adjusting your diet or as extensive as starting a completely new exercise routine. Even the smallest of changes can have a major impact on your overall health and wellness. Keep reading to learn our top tips for living with and managing Cystic Fibrosis.

Double Check Your Diet

Regardless of whether or not you have Cystic Fibrosis, eating a balanced diet is crucial for your body’s ability to fight off illnesses. In the case of those with CF, the pancreas doesn’t work as well as it should, making having a proper diet even more important. Since your body is constantly fighting infections and working hard to breathe, you need more calories each day than the average person. Make sure those calories consist of nutritious foods that are high in protein along with portions of healthy fat, dairy, fruits and vegetables.

Be on Germ Patrol

Unfortunately, those with Cystic Fibrosis have lungs that germs thrive in. The thick mucus that builds up is a prime environment for bacteria and viruses which can lead to infection, and in even worse situations, lung disease. With all things COVID-19 going on today, it’s even more important to stay away from germs and be smart about what you’re surrounding yourself with. Remember to wash your hands frequently, disinfect household items, surfaces and your medical equipment properly and avoid dirty or dusty areas.

Understand Your Treatment

Treatment for CF is often extensive, and the options are seemingly endless. Some things your care provider may prescribe include anti-inflammatory medications, mucus-thinning drugs, pulmonary rehabilitation and more. Another treatment option is vest therapy which can loosen mucus in the lungs and make it easier to cough up the extra phlegm. Our Afflovest is one example of these vests, scientifically engineered to closely mimic daily chest physiotherapy (CPT). It’s important to strictly follow your treatment plan to ensure it’s doing its job, so be sure to understand and follow whatever treatment or medication you care provider prescribes.

Exercise Properly

Exercising and being active all while dealing with being out of breath, coughing and tiredness may seem crazy. Believe it or not, it’s highly recommended that individuals with CF exercise regularly. It can help clear mucus out of your lungs as well as increase your body’s overall strength. Make sure you talk to your doctor about what exercise routine works best and is safest for you and your treatment.

Pay Attention to Your Mental Health

It’s no secret that having CF takes a toll on your physical health, but what about your mental health? Living with this disease isn’t easy and it’s normal to experience the stress and anxiety that comes with it. Make sure you’re taking care of yourself, paying attention to your emotional health, doing things that make you happy and talking to others about how you’re feeling. There’s no shame in feeling down – that’s what professionals like psychologists and counselors are for!

While Cystic Fibrosis isn’t an easy disease to live with, small adjustments can improve both your physical and mental health greatly. Start incorporating these simple tips into your daily routine and you’ll soon notice your CF becoming more manageable. To learn more about how we can help with your Cystic Fibrosis journey, feel free to contact us.

Ryan Lee